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Vinnie's avatar

I think I mostly stopped shoulding myself into exercise after my big two month relapse, after reading into ME/CFS and basically scaring myself sh*tless into resting properly.

However, I am a constant and habitual shoulder, both in what I should do and how I should be. I was speaking to a CFS suffererer a couple of months ago who told me that there seems to be a trend for perfectionism among people who develop CFS/ME. I think there’s something in it, maybe about disallowing yourself from fully relaxing and letting go, which your body needs sometimes, almost like it needs sleep. I blamed myself early on for getting so ill, thinking that it stemmed from my base state being one of constant stress and worry and nitpickery, which isn’t conducive to having a happy, healthy immune system (though I don't stand by that, since long-covid seems to have affected a full spectrum of people). But all my shoulding had meant I took a job at the beginning of the year knowing it was a bad fit for my then-circumstances, being an additional stress load I really didn’t need after a rough couple of years. But it seemed the thing I “should” do because it came with a nice pay check and the responsibility I “should” be wanting to take on as someone still in the early stages of their career. Bad idea. Going into covid while already feeling completely depleted just made things harder, I think.

Funnily enough after this illness I seem to have developed what is basically a physiological intolerance to any kind of stress. My fire alarm battery started intermittently chirping yesterday to remind me to change it, and my heart rate shot up till I worked out how to deal with it (the answer: accidentally bash the whole thing off the ceiling and figure out how to deal with it tomorrow). Emotional stress has been laying me up with PEM the same as physical exertion. Maybe this means I really won’t be able to ignore the stuff I know is “true” underneath all the shouldiness any more, and will have to start pursuing things that feed my sense of wellbeing and wellness rather than my self-esteem and the projected image of how I used to think I should be.

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