Thank you! We do have to appreciate the little things that bring comfort and joy. They are moments of normalcy. While healing, I have learned to have patience and be kind to myself. For now, I cannot take on all I have in the past and need to rest when my body tells me to so that I do not relapse. I feel such a connection with others who have suffered through Covid-19 and all the emotions that come with hearing their stories. The bond of sharing has truly helped me survive through the mental anguish of feeling like I was never going to feel normal again. Love reading your work!
Thank you, Lisa! (And what a lovely name, by the way!) The connection between long-haulers is an amazing bright spot in all of this. We are all going through something hard, new, and totally unknown, and I'm so grateful for the pioneers who launched the various support groups online. I didn't find one until I had been sick for at least 4 weeks, and it was like stumbling into an oasis after nothing but desert.
Thank you for your beautiful words that took me to another place and time. I’m currently sitting on a porch overlooking a beautiful valley enjoying a warm, sunny day while my family is off on a hiking adventure to see a waterfall. I did’t have The energy to go today.....hopefully tomorrow! In the meantime I will enjoy the life I’ve been given, the robin that came to visit and even the occasional mosquito! Post Covid symptoms will not steal my joy for today!🌺
Good for you for listening to your body and resting when you need to. That has been so, so, so hard for me to learn (still learning)! "Don't go chasing waterfalls . . . " I hope you're well enough to enjoy a hike soon, though!
I love the reminder and the image of sitting underneath the shadow of a favorite tree. My mistake was sitting there and feeling bad that I wasn't productive. But I realize from your words that sitting is enough.
So much trial and error. I would just like to ask how everyone handles their mornings. Takes me at least 2 to 3 hours to think straight and feel a drop normal. Any hints, thoughts, advice? Thanks.
Morning are tough! I've found that as I've started addressing my POTS symptoms, they have gotten better, and I wake up with more energy and ability to function. I load up on fluids and salt as soon as my day begins . . . but I still find that I'm more symptomatic early in the day than I am later on.
Thanks for responding! Any advice, thoughts of dealing with POTS and symptoms are greatly appreciated. Sunday morning here in ny. Sitting here doing lots of drinking water and coconut water!
Thank you Lisa, reading your text warmed My scared heart. Sick since March 28, had a couple of bad weeks and is really sad and afraid of never get My strenght back.
You’re an amazing writer! When reading your text, I was transported to the quiet and peaceful road under the canopy. Thank you for your dedication to bringing hope, where hope is scarce. I very much look forward to next week. XO❤️
Oh, I'm so glad! What a high compliment! Earlier in this illness, when I was bedridden, I would just stare out my window at the treetops. There were no leaves yet. By the time I was reliably out of bed for significant chunks of the day, they were green, lush, and completely filled out. I felt nature starved for awhile there, and I was surprised how much it helped to just imagine beautiful places I'd been. I'm happy that you could imagine your way into my tree tunnel, too!
Thank you for taking the time to make us all feel just a little bit better. I know I really appreciate hearing how others are "managing" through this tough time. Hopefully, we all will feel ourselves soon, or at least learn how to manage our various symptoms till we recover.
Thank you for reading and commenting! My body does seem to be slowly healing, and I'm also getting better at learning its new quirks and how to avoid triggers. I hope that's happening for you, too! There is so much trial and error in this.
Great to receive this ray of light in my inbox. Thanks. It was a dark start to the week facing up to not finding the right word for things like ice cream, watching a highbrow quiz show that I normally love and realising my recall, even for my specialist subjects is failing me. On the bright side, my noise sensitivity has cleared enough to stop me reaching for the skip button when my favourite rock songs come on 😊🌟
Brain fog and memory issues have been among the most frustrating symptoms for me, too! It's hard to feel like yourself when your brain can't keep up with its normal pace. I'm glad you are able to see a bright side, though, and listening to your favorite music sounds like the perfect way to treat yourself during a hard week. Thank you for reading and commenting, Kay!
Thank you! We do have to appreciate the little things that bring comfort and joy. They are moments of normalcy. While healing, I have learned to have patience and be kind to myself. For now, I cannot take on all I have in the past and need to rest when my body tells me to so that I do not relapse. I feel such a connection with others who have suffered through Covid-19 and all the emotions that come with hearing their stories. The bond of sharing has truly helped me survive through the mental anguish of feeling like I was never going to feel normal again. Love reading your work!
Thank you, Lisa! (And what a lovely name, by the way!) The connection between long-haulers is an amazing bright spot in all of this. We are all going through something hard, new, and totally unknown, and I'm so grateful for the pioneers who launched the various support groups online. I didn't find one until I had been sick for at least 4 weeks, and it was like stumbling into an oasis after nothing but desert.
Thank you for your beautiful words that took me to another place and time. I’m currently sitting on a porch overlooking a beautiful valley enjoying a warm, sunny day while my family is off on a hiking adventure to see a waterfall. I did’t have The energy to go today.....hopefully tomorrow! In the meantime I will enjoy the life I’ve been given, the robin that came to visit and even the occasional mosquito! Post Covid symptoms will not steal my joy for today!🌺
Good for you for listening to your body and resting when you need to. That has been so, so, so hard for me to learn (still learning)! "Don't go chasing waterfalls . . . " I hope you're well enough to enjoy a hike soon, though!
I love the reminder and the image of sitting underneath the shadow of a favorite tree. My mistake was sitting there and feeling bad that I wasn't productive. But I realize from your words that sitting is enough.
I think we've all made that mistake a time or two (or ten). I know I have!
So much trial and error. I would just like to ask how everyone handles their mornings. Takes me at least 2 to 3 hours to think straight and feel a drop normal. Any hints, thoughts, advice? Thanks.
Morning are tough! I've found that as I've started addressing my POTS symptoms, they have gotten better, and I wake up with more energy and ability to function. I load up on fluids and salt as soon as my day begins . . . but I still find that I'm more symptomatic early in the day than I am later on.
Thanks for responding! Any advice, thoughts of dealing with POTS and symptoms are greatly appreciated. Sunday morning here in ny. Sitting here doing lots of drinking water and coconut water!
I've laid out most of what I know in this article on POTS: https://medium.com/@lisajensenthomas/can-your-long-haul-covid-19-symptoms-be-explained-by-dysautonomia-f61a6d644202
Thank you Lisa, reading your text warmed My scared heart. Sick since March 28, had a couple of bad weeks and is really sad and afraid of never get My strenght back.
Love to you!
There are so many of us right there with you, feeling all the things! I'm sending you a hug from Kentucky!
You’re an amazing writer! When reading your text, I was transported to the quiet and peaceful road under the canopy. Thank you for your dedication to bringing hope, where hope is scarce. I very much look forward to next week. XO❤️
Oh, I'm so glad! What a high compliment! Earlier in this illness, when I was bedridden, I would just stare out my window at the treetops. There were no leaves yet. By the time I was reliably out of bed for significant chunks of the day, they were green, lush, and completely filled out. I felt nature starved for awhile there, and I was surprised how much it helped to just imagine beautiful places I'd been. I'm happy that you could imagine your way into my tree tunnel, too!
Thank you for taking the time to make us all feel just a little bit better. I know I really appreciate hearing how others are "managing" through this tough time. Hopefully, we all will feel ourselves soon, or at least learn how to manage our various symptoms till we recover.
Thank you for reading and commenting! My body does seem to be slowly healing, and I'm also getting better at learning its new quirks and how to avoid triggers. I hope that's happening for you, too! There is so much trial and error in this.
Great to receive this ray of light in my inbox. Thanks. It was a dark start to the week facing up to not finding the right word for things like ice cream, watching a highbrow quiz show that I normally love and realising my recall, even for my specialist subjects is failing me. On the bright side, my noise sensitivity has cleared enough to stop me reaching for the skip button when my favourite rock songs come on 😊🌟
Brain fog and memory issues have been among the most frustrating symptoms for me, too! It's hard to feel like yourself when your brain can't keep up with its normal pace. I'm glad you are able to see a bright side, though, and listening to your favorite music sounds like the perfect way to treat yourself during a hard week. Thank you for reading and commenting, Kay!